I honestly try to remain as positive as possible about this whole thing, and most of the time, I think I do a pretty good job at it. Sometimes, though, I have to vent a bit.... Here are some of my thoughts right now on a day when I think back to my experience, and my heart hurts for all of us.
* I'm glad to see that there are some class action lawsuits out there that some lawyers are trying to do for women who are suffering from the Mirena. That's fantastic. I have noticed, though, that all of them are geared towards the women who have had the IUD perforate the uterus, get PID, etc. Again, I am so happy for those of you who will find legal help if that happened to you. I'm blessed to say that my Mirena didn't perforate my uterus, so I can only imagine what that is like. Go get 'em, ladies!
* That being said, I'm anxious to see when the makers of the Mirena and/or some lawfirms are going to also deal with the HUGE amount of the rest of us who, even if we didn't have the physical perforation, had actual autoimmune/neurological/autonic/endocrine disease symptoms and worse due to the Mirena. Look around, you guys....look at how many of us actually got to the point of testing for Multiple Sclerosis, Lupus, etc., because our right side went numb, or our hands stopped working, or our legs are too weak to walk..... I sure didn't see anything about all of that in your little brochure. What about the ladies who thought they were losing their minds? The ladies who had to have spinal taps to test for MS? Do you have any idea what it is like to be a woman in her twenties or thirties, be typing at your keyboard or holding a glass, and suddenly be completely unable to use your hands? I sure do. It's absolutely terrifying. It's also just about the worst feeling in the world to be pacing downstairs in sobs while trying to figure out how you are going to start a conversation with your husband that explains how he might need to figure out what to do with the children for a while because you think you might need to admit yourself to a hospital....because you no longer have the strength to continue to fall apart. I know that feeling, too. I know what it feels like to be a multi-tasking, extroverted, and life-embracing mother working on a master's degree--a woman who not only enjoyed doing everything, but even excelled in that "pressure cooker" environment....who suddenly becomes an empty shell of a woman whose body was broken, whose mind and emotions were completely overwhelmed, and whose ability to simply leave the house was GONE--with no explanation nor strength to beat it. These are not unintelligent or unstable women that you are dealing with here, Bayer. We are strong and smart and hardworking....it's your little device that made us all so sick. I know what it feels like to feel like you are trapped in your own body and mind and not be able to make it WORK. I know what it feels like to be stuck in a nightmare even when you are wide awake. Where is all of that in your pamphlet or on your commercials?
* If I could speak to the makers of the Mirena, I would say this.....
Look, I understand that I don't mean anything to you. I'm just some random woman out there who has suffered immensely at the hand of your product--a product that I used because it was lauded as a safer form of birth control for a nursing mother. But you know what? If the same thing that happened to me happened to YOUR sister, YOUR mother, or YOUR daughter....I have a feeling that you would fight with everything you had to make her better--because it would KILL you to see someone you love suffer so badly and so constantly. I may not mean anything to you, but I do mean something to someone. I AM someone's mother, someone's sister AND someone's daughter. I MEAN SOMETHING. I deserve a happy and healthy life just as much as the women in your life whom you love. I only have one life down here, too. I think that should matter to you if you are going to be in an industry that makes things like this. Put your mother's face on that woman who is fighting desperately to get her life back. If it was HER tear-soaked eyes that stared back at you, would YOU fight harder to make sure that change is made to help her? Shame on you if you ignore us because dollars are more important. I'm right here....and I had to fight with everything I had just so that I could be the wife, the daughter, the sister, and the MOTHER whom those I love deserve to have...and a woman that I DESERVE to be in the only life that I get. There are so many of us out there, and that is the point of this blog. If you won't try to help them....then I will...at least as much as I can. Somebody has to try to help. I pray that your heart changes. You still have time to make this better, and it is time to be someone of whom you can be proud.