I thought that I would give an update on my journey toward investigating if I have Pseudo Tumor Cerebri.
Quick back story....I was one of the lucky ones who, after having the Mirena inserted, I lost most of my vision in my right eye (within the first couple of months). I went from great vision to legally blind in that eye (20/80 vision) virtually overnight. Anyway, after seeing the connection between Mirena and Pseudo Tumor Cerebri (click to learn more), I thought that I'd better make sure that wasn't something that I was dealing with (since it can back you end up permanently blind if not treated).
After researching it, it seemed like I needed to see a specialist called a Neuro-Opthamologist to accurately diagnose it. I also read that it was diagnosed via MRI and spinal tap results (Quick description: Pseudo Tumor Cerebri is when there is too much cerebral spinal fluid in your head, and it can crush the optic nerve from behind, causing blindness). I wasn't looking forward to a lumbar puncture, but I was willing to do it to find out.
After contacting a Neuro-Opthamologist, I learned that I had to have my Opthamologist send my information to him to be "accepted". I set up an appointment with her so that I could explain what I was trying to do.
At my Opthamology appointment, I was told that she firmly believed that I would be wasting my time getting checked for this...for two reasons: Number one, I was showing no signs of Optic Neuritis (a swelling or damage of the optic nerve--again, click for further detail), and I was showing no signs of Papilledema. She said that, if a person has PTC, they almost always show signs in one of those two areas.
That is as far as I got. In her opinion, I don't show any signs of having it, and she says that, with the extent of vision loss that I experienced, I more than likely would if that is what caused it.
So.....I guess I am at the point where I just have to accept the blindness in that eye and move on with my life. It is time to make the adjustments necessary to live with it. I'm sick of the glasses--mainly because every time I take them off, I literally become nauseous due to the extreme difference between both eyes (they start fighting one another), and it makes me dizzy and sick to my stomach. I don't have the money for Lasik surgery (nor do I know if I even qualify for it. I haven't checked because I don't see the point in doing to the consultation to see if I qualify when I know that I can't even pay for it right now. So, next week, I am going to be fitted for contact lenses so that I have something in my eyes all day to keep my eyes "equal". Hopefully, that will help....and I'm hoping that--one day--I will be able to do the Lasik surgery on that right eye so that I can see again from it. Fingers crossed....tightly.
As frustrating as this is, I am at 17 months post removal, and--overall--I am doing so much better that I am beyond grateful. I think about where I was a year ago, and it still makes me cringe. I remember praying that it wasn't going to be my last Christmas with my family and wondering how I was going to have that conversation with my husband....what we were going to do to plan for the worst-case scenario of mom no longer being in the picture (because I would either be physically gone or so "mentally gone" that I couldn't function). Remembering that, I will accept the blindness in that eye as something frustrating and unfair, but something as as "hiccup" in my otherwise healthier and happier life than this time last year. What else can you do, right? Dust yourself off and move forward....we know that all too well, don't we?
I hope that explains my latest process clearly enough. I am still praying for all of you, and keep fighting.....I can tell you that I still feel myself getting better and better as each month passes. It's been hard (I've never taken so many supplements in my life! Ha ha), and it has been frustrating, but it is moving in the right direction. What I'm doing is working....and I choose to focus on that.
My love to you all.
Best of luck to you i know what you are going through im having the same issues!!!!
ReplyDeleteI wish you had your contact information on here somewhere. It is a breath of fresh air to have someone else know what I am talking about. Four years ago I had my new Mirena in (first one, no problems). This one was totally different (I even had a period with this one and didn't with the other one, but that was the least of my problems). A couple months after the Mirena was implanted I would wake up and as soon as I would stand up, my whole vision would black out and then s-l-o-w-l-y come back like a tunnel and then I'de be good...until I sat up too fast, stood up too fast, hung upside down (pilates), ran or worked out, etc. I was scared and thought that I had some sort of brain tumor...but I was just too scared to see a doc...I just didn't want to hear the news. Long story short...MRI said no tumor...no bleeding. I wasn't dying...so I exhaled. Then I had the dreadful spinal tap...not fun at all and was horrible. Yep, I have extra fluid building up fast in my brain. I said all along I thought my birth control had something to do with it...but three docs denied it. So, I did some more research and googled the right thing this time and found a direct connection with Pseudo Tumor and Mirena (well the main ingredient in Mirena)...I had no idea others were going through this...I felt all alone because four years ago there was nothing on the web about this.
ReplyDeletecan you email me? Cposorski19@yahoo.com this is exactly my current situation i got mine in may 2012 june i started having issues i just now got the official diagnosis and my primary doc obgyn and the nueorologist think im crazy
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DeleteGot mine October 2012. Became severely anemic the fist year from the bleeding they told me was normal. In the last 3 months I have had severe vertigo, vision changes, severe headaches in my neck and head that feel like my head is going to explode. How do I get my MD to check for this? Murena comes out along with my uterus next week since it grew into my uterine wall along with a fibroid...
DeleteHello, I had a Mirena implant for the full 5 years, during that time I began experiencing MAJOR headaches,vertigo, flashing lights, and this insanely weird sound in my ears(sounds like a cell phone vibrating in my ears). When I had the Mirena removed, it was ALMOST perforated through the back uteran wall as well as partially embedded. I had it removed about 8 years ago, I still have the same headache and ear symptoms and vertigo...can these symptoms persist after having the Mirena removed, will it ever go away??
DeleteSame here. I am not even able to work right now.
Delete10 years ive had the mirena iud. Replaced twice and the doctors claim everything is fine. This whole time I have had severe migraines, vision problems, anxiety, etc. I believe the Mirena is the cause!
DeleteThis sounds like exactly what happened to me!!! In September 2010 I had Mirena inserted. (my first one) I noticed problems with my vision in the summer of 2011 but I kinda put it off thinking my blood pressure medication was bringing my pressure too. I would loss my vision when I stood up, bent over, or even getting up in the morning from laying down all night. In August 2011 I had my routine eye exam and the doctor was asking me some really weird questions. (but now they made sense) She was asking if I had problems with losing my vision at all. My response was "yeah". She then told me I had papilledema in both eyes and wanted me to see a specialist. At my next appointment I had MRI, MRV, and MRA no tumor found. (thank god!) Next up was a spinal tap and my opening pressure was 36. By this time I had done lots of research about pseudotumor cerebri and its causes. I kept coming up with Mirena (levonorgestrol) is linked to PTC. With this information I took it all the doctors I was seeing at the time. Over and over everyone told my the same thing. "Oh that's not the cause of your PTC, I've never heard of such a thing" Even my OB/GYN! I am a firm believer of you are your own advocate. I had my Mirena removed soon after my spinal tap and will never look back. I still am living with all the symptoms of PTC. I currently am taking Diamox Sequels 1500mg daily, Potassium 20 meq (because the Diamox removes potassium from your body) and pain medications for the headaches. I wouldn't wish this on anybody!!!
ReplyDeleteI have experienced the same problems with the mirena. Was fine..., had one placed in September 2005. Not long after, tons of headaches. I was prescribed Topamax and went on with life. Had daily headaches, some days really bad. Vision changes etc. Then in September 2011 I had that one out and another one placed. OH MY GOODNESS! I can only say that I am living a horror show with the headaches that I have. I had it removed because we were considering having a child..... only recently did we learn of the link. I can't get it under control now. In two days, going to see a neurosurgeon for possible VP shunt. Can't take it anymore. And I agree.... would NOT wish this on anyone. You can find me on facebook at www.facebook.com/minisfree
ReplyDeleteI'm a victim as well. I did have a VP shunt placement in December 2008 but I did not want to remove the IUD... When I did well I got pregnant:) The thing is when you go into labor you actually are supposed to have some increase in cranial pressure... which i'm not capable of due to the shunt. Not my favorite thing but I do have a really cute boy out of the deal. I see so much on the lawsuits for Mirena but nothing in there for people like us... feels wrong.
ReplyDeleteWhat is a VP Shunt? And after you had the Shunt put in do you now have less Spinal Fluid going to your brain?
DeleteI had the mirena coil fitted in dec 2014 and started getting headaches, then weakness in limbs, neck problems then my optic nerve in my right eye went. I am still waiting for the neurological doc appt have had mri and blood test done. My gp said no tumours in brain but cant give other results.
ReplyDeleteI had the Mirena inserted Dec 2009, 6 wks after the birth of my second child. Unknowingly, I suffered many of the side effects of the Mirena in the first few months, but chalked it up to post-partum issues. 4 months after insertion, I woke up one morning with blurred vision in my right eye. I went to my eye doctor thinking I needed a new prescription. With my glasses on, I could barely see the "big E" on the eye chart. My eye doctor was freaking out almost as much as me. He did a bunch of testing and then referred me to a Neuro-Opthomologist for additional testing to rule out brain tumors, MS, ect. My MRI showed damage to my optic nerve. At first, they thought I had Optic Neuritis, which is an early sign of MS and transient ,but it never resolved. After some experimental testing and new results, I was referred to a Retinal Specialist. The first question he asked me, is if I was on birth control (no one had asked me that). I told him that I had the Mirena and he said that was it! I had the Mirena removed the next day! He also sent me to a different neurologist, who after doing a spinal tap, ruled out MS. My official diagnosis is Ischemic Optic Neuopathy (mini-stroke to my optic nerve for my right eye), which usually only effects elderly people. 4 years later, there is still no correction for my vision problems. At the age of 37, I am legally blind in my right eye thanks to the Mirena! I am thankful that the stroke was not worse and that I still have my left eye, but lawyers are saying that because they haven't heard of many similar cases and because I didn't require a surgical removal of the IUD, I don't really have a case right now. Very frustrating. What I found interesting from reading some of your earlier blogs, is about the Vitamin D deficiency. I also suffer from this and now take supplements...
ReplyDeleteI can't believe I just read my life so eloquently written. I've been through so much and today I googled "Life After Mirena" because I had mine removed only a few hours ago. I worried that it would hurt as much as the insertion did, but it didn't! I was hoping to find out what kinds of benefits would befall me now that I've gotten rid of the tiny little foreign object that was ruining my life. In addition to the numbness in my brain and in my limbs, several MRI's and the fear of severe neurological issues and MS, I've been on 5 pills a day (including prescription pain killers) just to manage the migraines. When I left my doctor's office and got into the car today and as my husband drove me home, he asked me how I was feeling and I could honestly tell him that I felt "lighter". That was my overall feeling and as we got closer to home, I swear I could feel my head tingle and a sense of something awful leaving that part of my body. These are the strangest sensations I've ever had, but even a few hours later, my joint pain is better and I'm getting around so much betters than even yesterday. I'm getting ready to walk the dog and I can't wait for the rest of the good stuff to happen in my life after Mirena! Thank you so much for your blog :)
ReplyDeleteWow, this is so interesting! I was diagnosed with PTC about a year and a half ago. I had no idea that there was a link to the mirana until now!
ReplyDeleteI have an upcoming appointment to remove the IUD now, however, am wondering, did any of your symptoms go away after the removal??? I'm terrified, what if this is permanent?!
Wow, this is so interesting! I was diagnosed with PTC about a year and a half ago. I had no idea that there was a link to the mirana until now!
ReplyDeleteI have an upcoming appointment to remove the IUD now, however, am wondering, did any of your symptoms go away after the removal??? I'm terrified, what if this is permanent?!
I was 21 when I had the iud implanted it was 2006 and my on told me it was this new wonder birth control no periods no side effects so naturally I said sign me up at that point after my first child I didn't know what I was saposed to feel like looking back now I felt like crap the whole time after awhile I started having bad pain in my feet and I let it go making excuses I gained weight or I work on cement floors .,, until it got to the point where I was having severe difficulties walking so I went to the docs they said I ha plantar fashieitis and sent me to a specialist who took a look at my feet and said there was nothing he could do because I had high arches and then tried to sell me hundreds of dollars worth of crap that, and I quote " might help for a little while" he didn't do any testing or x. Rays ....so I manned up. What else could I do? Then a year or so later I saw all the law suits rolling and got right on having it removed it had been about 6 years at this point. After my periods were terrible and my feet would get really bad right before (I blamed water weight) then I started having problems with swelling in my arm every now n then dos would say tendinitis and I would carry on ... Then a year ago my arm swelled up and did not stop the pain was awfull and they sent me to a hand specialist he put me through the ringer with tests and would schedule my appointments months apart and my last appointment after an mri I was sitting in his office he examined my arm. I told him about the numb tingling pain and the weird little shocks and he said hmmm... I do t know maybe one of your bones is longer than the other ... Needless to say I didn't go back I was so angry I cried and scheduled an appointment with my regular doctor at this point I noticed my arm would also get really bad right before my period and stay bad during I'm pretty sure those are the worst 2 weeks of my life every month. All my doctor could say was that's weird and finall I ended up seeing a pa and tried a low dose birth control thinking maybe it was my hormones messed up from the iud .... It was the worst expierence of my life everything escalated 100% and I linked the pain in my feet to my hand so she sent me to a neurologist who it took another four months to get an appointment with so last week she diagnosed me with neuropathy ... I still can't shake the feeling that this iud had something to do with it I'm seeing the pa again on Monday because my blood pressure is high but I plan on having her run the silicon testing and see what happens maybe one day I will feel better
ReplyDeleteI had the IUD in 2008, 9 weeks after my daughter was born. I started having headaches, blurry vision, ringing in the ears, little things floating in front of my eyes, etc. I went to the Dr more than once and was told that it was low B12 or some other issues so I quit going to the Dr and just decided I would have to deal with it. My vision kept getting progressively worse. I finally found an eye doctor who did not cost a lot so I went to him. By this time my vision was horrible. Due to how bad it was he suggested I do the peripheral vision field test where you click the button when you see a dot. I bombed it. He then looked at the optic nerve and it was swollen. He started asking what sounded like weird questions at the time but later made a whole lot of sense. Then he told me that I had "a goofy optic nerve and he was unable to assist me with my issues". That was not a fun thing to hear. I was referred to an opthalmologist who performed a battery of tests. He said that he was almost certain I had PTC. I was referred to a neurologist who did a MRI, lumbar puncture, etc and diagnosed me with PTC. I have been taking Diamox 1,500mg since July 2014. Most of the symptoms are better. The swelling of the optic nerve is better but the vision loss is still there. I now have 20/400 vision without glasses.
ReplyDeleteim just now seeing this post, I had no idea until today that my pseudotumor cerebri was caused by the Mirena I had in 3 years ago. 1 1/2 years ago I had to have a VP shunt placed in an emergency situation to keep me from going blind due to the papillary edema and pseudo-tumor cerebri. All thanks to my optometrist catching it nearly 6 months before that, that my eyesight was declining, but had to do further testing to get my insurance to cover everything. I have been living in excrutiating pain for the past 2 or so years, dizziness, nausea, lights flashing, pulsing tinnitus, etc. Just found out my shunt is malfunctioning and I am back on Diamox until I can get a replacement VP shunt in my head. Not a fun experience with a 3 year old, being a single mother, and you can't work. Hard to get on disability, etc.
ReplyDeleteI feel this so much :( 2 and a half years later im so dizzy. Pulsatile tinnitus in my left ear. My spinal tap two years ago said i was negitive for IIH but i dont see how when im still super dizzy.
DeleteI have spent years in horrible head pain. It turned out to be a csf leak, brain fluid leaking from a hole that blew through my dura. I had surgery to fix it 2 months ago. I now realize it was my Mirena. That Mirena is out..never again. The hell its caused me and others..it should be taken off the market!
DeleteI have spent years in horrible head pain. It turned out to be a csf leak, brain fluid leaking from a hole that blew through my dura. I had surgery to fix it 2 months ago. I now realize it was my Mirena. That Mirena is out..never again. The hell its caused me and others..it should be taken off the market!
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ReplyDeleteWow... I haven't even had my Mirena in for a week and I am making an appointment to have it removed tomorrow. I seen the lawsuit commercial on tv tonight which actually scared me and made me want to research more info. Glad I did cuz now I am terrified! I didn't want the mirena in the first place bit my obgyn assured me it was safe and most effective. I actually wanted the "rod" (placed in the arm) anyone has any thoughts on that?
ReplyDeleteI seen that lawsuit commercial too but it was already to late for me! Tbh I recommend not getting any birth control! All birth control is bad for our bodies being the fact that God didn't create our bodies to be able to bare a child for us to put something in it we know nothing about to stop us from barring that child. My best recommendation is to download the flow app and keep track of your periods and when you ovulate or to use protection orrrr you can wait until marriage to have sex....
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ReplyDeleteI have been having problems for the past 4 years with headaches in the back of my head. I have gone to several different types of doctors and have also had several different types of tests. I have even resorted taking medication for anxiety, as one of the doctors indicated that stress can manifest itself in the form of headaches in the back of the head. Recently, I have experienced problems with my vision. I have tried to get the IUD removed a couple times by different doctors and they have all discouraged me from getting it removed, stating that the IUD is one of the most effective forms of birth control out there. After reading information today on the internet about how the Mirena IUD can cause Psuedotumor Cerebri, I am going to have it removed immediately.
ReplyDeleteGirl get that demon birth control up out you!!! If your obgyn is telling you not to get it removed you need to change your obgyn! It's your decision to get it taken out just like it was your decision getting it inserted all they can do is recommend things based off their own opinion, but what they cannot do it make a decision for you!!!
DeleteI had the exact same problem!!! I got the Mirena 5 years ago, but only had it for 3 years because I was reading on how a lot of females that get it end up miscarrying or become barring because of that birth control, so I was scared and got it removed. I started experiencing really bad headaches, loss of vision, getting light headed while standing up too fast, tingling in limbs, ringing in the ears and dizziness, but didn't even think it had anything to do with the birth control. I didnt think nothing of it until I went to get my contacts and glasses renewed and they did the eye exam and told me that I had papilledema in both eyes and that it might be because I may have pseudo tumor but I need to go get an MRI to make sure it wasn't a real tumor and thank God it wasn't. So then they told me to go see a neurologist. I didnt need to get a spinal tap thank God. My neurologist told me that it was strange that I was diagnosed with pseudo tumor because usually its common in people that are over weight...so for the longest time I was wondering what may have caused this to happen to me..when one day I was watching TV and a commercial came on and it was one of those lawsuit commercials that was like "if you had the Mirena I.u.d and have gotten pseudo tumor you may be entitled for blah blah" I was like omg!!! Now I'm reading all of these stories and it gives me clarity and relief ! Stupid birth control. I'm glad I took it out within 3 years instead of keeping it the whole 5 years. I should of gotten it removed sooner but what's already done is done and I can't go back and dwell on the past but I can continue to share my story and warn people about this killer birth control! God bless you and all going through the same thing!!! We may be the unlucky ones that had to go through this but we are the blessed ones that survived it to live on and tell people about it!!!
ReplyDeleteSo are you saying your Neurologist diagnosed you with the PsuedoTumor Cerebri without doing a Spinal Tap?
ReplyDeleteAnd, did you contact the lawyer?
I am so glad that I found this, I thought for sure I was alone in what was going on with me. I had the Mirena put in after my first child and had horrible problems, when I had it taken out I found out that it was not placed properly and causing major bleeding at the time. Well when I had my second child, my OBGYN suggested that I try thee Mirena again. I agreed and we placed it. I thought all was fine. I suffer from Migraines and thought nothing of the "headaches" I was getting, but now that I look back on things, they changed drastically, mine have ALWAYS been on the left side of my head and they changed and were more focused on the right side and especially behind my eyes. I worked with my doctor for about two years with many medication changes and no relief. I tried EVERYTHING, I even went and had the piercing done on my left side to try to help and OH my that solved my pain on the left, but not the right. So within the month of getting my piercing I went and had my right side done, and the next day all hell broke lose in my life. I could not get out of bed, I could not work because everything spun and I got horrible double vision and tunnel vision when I would stand up. I kept getting pain in my right arm above my elbow and then my whole back and neck hurt. I went to the Urgent Care clinic and the ER in such pain, but once they saw I suffered migraines that all they wanted to do was give me pain pills and muscle relaxants, even though I kept telling them it was not a migraine. My primary doctor was trying everything to help me, he sent me to physical therapy to try to relieve the pain in my neck and back, but nothing helped. This about the time that I started to have blank spots in my vision and he suggested I go to my Opthamologist and get checked out. When he looked at my eyes he saw the papilladema and immediately knew what it was. He contacted my doctor and we got an MRI and Lumbar puncture and referred me to the Neuro-ophthalmologist. The MRI was clear, but my Lumbar reading was extremely high. The Neuro doctor put me on Diamox and Potassium to bring the pressure in my head down and ordered an MRA to rule out a blood clot. Well fun times for me, I have a blood clot and the medications put my Iron and Potassium at dangerously low levels and I was hospitalized for a week and given several blood and potassium infusions. I am now out of the hospital for 2 months, but am still battling everything. The medication is not bringing down the pressure and they are hesitant to put in the VP shunt because of the blood clot that I have. I have been told that it might take anywhere from 6 months to a year before my vision will stabilize. I am so frustrated with all that has happened, I am now told that no matter what I cannot get pregnant again because of the risk for blood clots and I cannot do any type of birth control because of the risk for blood clots. What am I to do, I am now having to look into having my husband get a vasectomy because they will not tie my tubes or do a hysterectomy on me because of the blood clots. My medical bills are piling in and now I get to come up with a way to pay them as well as all the bills for my husbands Type I diabetes. I am lucky to be here and I am grateful for that, but I should have never had to be in this position, This is something that needs to be out there and women need to know the risk. I have even seen another IUD out there that is basically the same thing as the Mirena and doctors are suggesting this to women. I wish there were more answers than just the questions that we all are left with. Even with all that is going on, none of the doctors are willing to say that the Mirena is the cause of any of it.
ReplyDeleteI am a nurse and a ophthalmic assistant. We see PTC usually in young overweight women. I find these stories very interesting and scary. Do not ignore any changes in vision with any new medications. Always seek out an Ophthalmologist.
DeleteI myself have a Paraguard IUD.
No hormones. It is very safe and good for 10 years. Has been around for a long time. I never had a problem in 8 years. Might be something to look into.
About 2 months after Mirena placed I began having daily headaches. They seemed like sinus infections. Was treated with 3 rounds of antibiotics and steroids. After a Cat scan that showed my sinuses are fine, my ENT said it must be migraines and referred me to neurologist. I put it together that in 38 years I've never had migraines so it must be my IUD. Got it out last Tuesday and my head is still throbbing, nauseated and weak. Anyone else take this long to return to normal after it's been taken out? Do I need an MRI? Haven't noticed vision changes but just bad headaches.
ReplyDeleteIm in the same boat and i had to go to the ER and they did an MRI and seen that i had IIH. They drained some fluids off and put me on diamox. My mirena has been out 3 weeks and just got out the hospital last week. Still have pressure headaches but im hoping everything will go back to normal soon
DeleteI had a Mirena IUD inserted last Thursday. Within 24 hours I had an intense headache and blurred vision so bad I could barely drive home from work. I have been to the ER three times for the headache. Then to the regular doctor. At all four appointments I had to get a headache cocktail which consists of intravenous medicines to reduce the pain, inflammation and swelling. They had to rule out sinus infection and meningitis. I have had a CAT Scan and a Spinal Tap in the ER. Still waiting for an MRI and Opthamology Appointment. I got the IUD out on Tuesday, so essentially it was in for 5 days. I have spent a lot of time with ER doctors, but still need to see more doctors and ensure I can get back to work. Had to go out on disability. Prescription meds are keeping me out of the hospital for now but if I don't keep up with the meds the headaches keep coming back. The only positive thing that I can think is that because my effects were so sudden and severe I was able to make the connection to the Mirena and get it out. Just worried all this will now be permanent. Thoughts? Advice?
ReplyDeleteI just wanna know a success story from pseudotumor cerebri. I had my mirena in for 1y and 7mt. My pressure was 26 now its 12. Still have a headache although according to my doctor ut ciukd be bc i was taking otc meds for 4 mths. I just dont know how long this is gonna last. I cry daily. Facebook name is Lynette Johnson.
ReplyDeleteBy yours only being in there that short of a time i highly doubt youre going to feel pain for a long time. I wish my symptoms would have came that quickly. God bless and get well
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ReplyDeleteJust got Mirena taken out today. How long do the symptoms last? Hoping not forever. Anyone join the class action lawsuit? Recommended lawyers that already have a case?
ReplyDeleteI am trying to get my thoughts together right now. I saw the commercial for the first time about the Mirena lawsuit...And I have to say right now I am just about livid. I had Mirena a few years back. I had it put in 2012 and in May of 2013 I had a hysterectomy (mind you I was only 33 at the time but had a history of severe endo...cysts...And to find out adeno). After getting Mirena I had the worst headaches ever (did have a history of migraines) but these were so much more than a migraine. But my mom passed in 2012 and I had a lot of problems dealing with losing her. So thought maybe it was related to that. But the pain in my abdomen was so severe I decided I had a 2 year old and hysterectomy was my best option seeing as neither tube was good and my uterus was a mess. But continued to get sicker with the migraines. It got to the point they came on in a flash literally and I would be throwing up and lethargic for 16 to 24 hours. My family was spreading rumors I was a drug addict. Well come to find out I have a genetic disorder along with an autoimmune disorder. Treated the autoimmune and have been inactive for a year now....a blessing. But migraines are daily so saw my Neuro....I already had a Neuro. Came to find out I had hydrocephalus with Arachnoid cyst. I was born with hydrocephalus but it resolved with no shunt and never had any type of disability from this. Well since then things have been crazy. I have been diagnosed Pseudo tumor cerebri. With a filling defect in a sinus vein in my brain. My vision is ridiculous. And the pain, spasms (from the pressure), vision issues, nerve issues which are now causing walking problems have so severely affected my life. A year ago I thought I'd be mentally gone by now. I've had so many tests and procedures and now to find out that a lot of this may be due to Mirena really irritates me. I'm not sure what lawyer I will call but I am today. And I worked in the medical field my whole life until 2014 when I became too sick so I am not one to just sue. I understand medical is not an exact science but this has ruined my career and makes life not seem worth it some days and all because of an IUD. Very sad.
ReplyDeleteHey! I tried finding you on fb but I couldn’t, are you feeling better?? Thx
ReplyDeleteCould someone please tell me if you feel like yourself after taking out Mirena? I just had mines taken out and suffered with dizziness headaches spasms, has anyone taken any natural supplements that has helped as well? Thanks!!
ReplyDeleteIm suffering dizziness and vertigo like crazy. I asked my obgyn for a hormone test. Just waiting on results. Mines have been out since jan1st. I heard just havent tried that chasteberry vitex works but imo i would do a hormone test first to see what you r lacking
DeleteHi all,
ReplyDeleteI Had the mirena fitted three years ago after I had my twins. From the beginning I noticed changes such as frequent urination, acne, psoriasis, weakness in my hands , pain, dizziness, brain fog, hair loss and the list goes on. Anyway it came to breaking point two weeks ago when my shoulders and back were so sore that I could hardly move. So I went to get my mirena removes on tuesday by my gp only to discover that she couldnt remove it because it was embedded. So off to er I went for the removal. After being pulled and prodded for the second time it snapped so I know am awaiting an appointment to have it removed surgically. I have been nauseous and vomiting since .. I have been to the doctors four times , my head feels like there is lots of pressure and I have been having the shakes also. My doctor put me on valium to calm my anxiety and anti-depressants. I really hope these symptoms go away I have for lovely children and I feel like im dying . Has anybody else experienced this?
Thank all of you guys for this information I’m in the hospitalas I type this and I’ve been wondering what’s going on with me the past month stomach pains weight gain and my vision is blurring !! And I’ve been on mirena for 3 years ! Thank god for this information my eye doctor said I have papillidema and puesedo tumor I’m glad I caught it early !
ReplyDeleteCan this stuff start after only 1 month. Last week I started having stomach pain, nausea and dizziness. I've also had some memory/concentration issues. Yesterday my left eye was hurting and blurry so I took my contacts thinking it might be irritated, it's not any better today. Starting to get a little worried but not sure if symptoms present this soon.
ReplyDeleteI was diagnosed with stage 3 breast cancer in August 2010. A valuable friend told me about Dr. Itua Herbal Center in West Africa. She gave me her phone number and email address. I quickly contacted him to guarantee that his herbal medicines will heal my cancer and I will heal forever I said OK.I ask him what is the healing process, he asks me to pay the fees I did and within 7 working days he sent me the herbal medicine and then he asked me I told my friend Gomez about the herbal drug so that he gave me to go and drink it.So after drinking for two weeks, I was cured, I am so grateful and I promise that I will do it I recommend to anyone who has cancer and that that I am doing. Herbal medicine Dr. Itua makes me believe that there is hope for people with Parkinson's disease, schizophrenia, cancer, scoliosis, bladder cancer, colorectal cancer, breast cancer and breast cancer. kidney cancer. , Leukemia, lung cancer, skin cancer, uterine cancer, prostate cancer Fibromyalgia, a
ReplyDeleteFibrodysplasia Syndrome, Epilepsy,Sclerosis sickness, Dupuytren's Disease, Diabetes, Celiac Disease, Angiopathy, Ataxia, Arthritis, Amyotrophic Lateral Sclerosis, Alzheimer's Disease, Lupus, Adrenocortic Carcinoma.Asthma, Allergic Diseases.HIV Help, HIV Aids, Herpes, Disease Chronic inflammatory, Memory disorder,
Here is his contact information ...... [Email ... drituaherbalcenter@gmail.com. Whatsapp ... + 2348149277967]
I was diagnosed as HEPATITIS B carrier in 2013 with fibrosis of the
ReplyDeleteliver already present. I started on antiviral medications which
reduced the viral load initially. After a couple of years the virus
became resistant. I started on HEPATITIS B Herbal treatment from
ULTIMATE LIFE CLINIC (www.ultimatelifeclinic.com) in March, 2020. Their
treatment totally reversed the virus. I did another blood test after
the 6 months long treatment and tested negative to the virus. Amazing
treatment! This treatment is a breakthrough for all HBV carriers.
Goji Berries... yes... I tried those too.For my health conditions, Those sweet, red berries seemed to help, but only during the time when I consumed them. I don't want to take a drug for the rest of my life, so why would I want to take a natural supplement everyday for the rest of my life (although Goji berries are very tasty and are highly nourishing). To me this was not a cure either (and I'm LOOKING for the CURE).
ReplyDeleteUp to that point, I hadn't found a cure. I felt like a young jumbled mess. I continued to have extreme pain, but continued on my path to healing. I started to focus on myself and not everyone else. When I was a young adult, I took on too much responsibility out of a sense of obligation. This was no longer healthy for me, so I resigned from all my projects and groups. Those days to come were the best [and worst] days. I took a lot of time off work, yet begun to feel so extremely exhausted. Many health professionals "diagnosed" me with adrenal fatigue & Hiv,Prostate Cancer so my situation was annoying then I keep searching for permanent cure online that's when I came to know of Dr Itua herbal center hands whom god has blessed with ancestral herbs and a gift to heal people with disease like .Cancers,Alzheimer's disease,HPV,Men & Women Infertility,Melanoma, Mesothelioma, Diabetes, Multiple myeloma, Parkinson's disease,Neuroendocrine tumors,Herpes, Hiv/Aids,Non-Hodgkin's lymphoma,, chronic diarrhea, COPD,Love spell, Hepatitis... So I made a purchase of his herbal medicines and I have been watching my health for 6 years now and I actually confirmed that his herbal medicines are a permanent cure and I'm so happy that I came to know of his herbal healings.You can contact Dr Itua herbal center Email: drituaherbalcenter@gmail.com WhatsApp: +2348149277967. if you went through exactly what I go through in terms of health conditions because to be honest there is more to learn about natural herbs than medical drugs.